I was now getting to be a walking map of the LGI, and come
appointment day I intended on getting to the waiting room with plenty of time
to spare, on the off chance that I was going to get in and be seen early. My
symptoms however had decided against this and prior to leaving for the hospital
I suffered one of the worst falls since being ill. My legs were getting
progressively weaker, steps were proving near impossible and I was finding
being a strong righty meant I was dragging my right foot and taking the brunt
of the fall on my left. Cuts and bruises were aplenty. This fall culminated in
re-opening on old scab on my left knee as well as adding a new one with a
bruise to match, and leaving my confidence quite shaken.
About me section
Hi, my name is Paul, I’m 26 and I have CIDP (Chronic Inflammatory Demylinating Polyneuropathy). This blog will try to document my symptoms, progression and treatment from start to finish, along with my frequent encounters with the NHS in both West Yorkshire and south Wales. This blog is an attempt to keep you and more importantly me entertained on this ongoing, ruddy bumpy, uncomfortable and often frustrating journey.

This is me. Mid way through the Yorkshire 3 peaks in July 2012. 13 miles down, 13 more to go! (Not at all demoralised)
I can honestly say, my feet have never ached so much in my entire life! But from this I hope you can tell I was just like everyone else; reasonably fit, happy, quite outdoorsy and a keen angler (A link to my other blog Paul on Coarse Fishing can be found here). Now, I’m considerably less fit, still happy (with a few moody bouts), generally house bound (unless I break the Zimmer out) and it’s been well over a year since I’ve wet a line. If you’ve read this far you’re probably either aware of what CIDP is or are thinking “what on earth is this guy on about?” If either of those are the case, you’re committed, and I’m about to begin the story from the beginning...
Showing posts with label Pudsey. Show all posts
Showing posts with label Pudsey. Show all posts
9 September 2013
Appointment with Dr Dunn
Labels:
Diagnosis,
Dr Dunn,
Dropped Feet,
heavy legs,
Leeds,
Neurology,
NHS,
Numb hands,
Numbness,
Pudsey,
Symptoms,
Tingling hands
Location:
Leeds, West Yorkshire, UK
7 August 2013
Citizens Advice Bureau.
A few days after my meeting with Debbie Jackson and
Occupational Health my partner and I booked in to the local drop in centre of
Pudsey’s CAB. Again looking for some advice on my options, and who I needed to
speak to. I was still unprepared to accept that my illness now meant that I was
physically disabled (although my body bore the bruises, cuts and scrapes
showing that my mobility issues were now becoming a more dangerous adventure).
Location:
Leeds, West Yorkshire, UK
Occupational Health and other adventures...
On the advice of Debbie Jackson I booked an appointment to
see Occupational Health. Apparently there isn’t anything that can’t be
organised from Robin Lane Surgery. I wasn’t sure what to expect from this chap,
and sadly after my first (and only) encounter, it wasn’t a great deal.
22 July 2013
Meeting with Debbie
It was time for me to make another appointment with Robin
Lane Surgery. Prise aside, I never take time off work. If I’m ill, I’m ill,
nothing that a Lemsip won’t sort. And if that fails there’s always solphadol!
The prospect of taking an extended period of time off to get well never
occurred to me, as I was prepared to soldier on.
2 July 2013
Lets get high!
If you’ve read my earlier posts, you’ll be well aware that I
am an avid Googler, and yes I Googled Citalopram after being prescribed it for
anxiety. Having never been part of the social drug taking scene as a teenager
(aside from the obvious teenage hangovers), I have no real experience of
getting high.
Location:
Leeds, West Yorkshire, UK
Relief, Respite and Improvement
Relief was my main thought having received the results of my
MRI, undeniable relief. Also, for the first time in some weeks my symptoms began
to abate. My legs didn’t feel so heavy, the tingling sensation in my hands drastically
reduced. My grip even seemed to be showing the smallest signs of improvement.
After feeling unsteady on my feet following my fall outside the hospital a week
or so earlier, I even surprised my family by walking 4 or so miles around
Temple Newsam Estate as an Easter Sunday treat. I thoroughly enjoyed seeing all
the newborn animals in the estate farm and walking around the ponds and
orangery.
Monday Morning follow up!
So Monday morning came around and although still shaken up
by the weekend’s events, I went back to Robin Lane where I was seen in the
emergency care walk in clinic (a brilliant idea) by Dr. S. DeMowbrary. Regaling
her with the story of what happened on the weekend she showed obvious signs of
concern and asked what I wanted to do. I said ideally (and from what I’ve read)
an MRI would certainly rule out any disk herniations, or more specifically
spinal lesions associated with MS. Seeing that I was still unstable on my feet
and finding it difficult to stand on my tip toes, jump or jog, she requested an
urgent MRI to try and advance my situation.
Labels:
Anxiety,
Calf ache,
CIDP,
collapse,
Diagnosis,
heavy legs,
Pudsey,
Robin Lane Surgery,
Symptoms
Location:
Leeds, West Yorkshire, UK
21 June 2013
Bloody bloody bloods
A few days after my appointment with Dr Hambridge I had my
blood taken, and as the title of this post suggests, they took a lot! But as I was
surprised to discover, there are a whole raft of other potential ailments and
illnesses that present with a tingling sensation in the extremities. Not
particularly encouraging, (especially as the on-going joke between me and my
partner was that “I never get ill”) but I wanted answers!
![]() |
I hate needles... |
Labels:
Blood Test,
CIDP,
Diagnosis,
Leeds,
NHS,
Numbness,
Pudsey,
Robin Lane Surgery,
Tests,
Tingling hands
Location:
Leeds, West Yorkshire, UK
20 June 2013
The Beginning
The end of December 2012 saw the onset of my initial symptoms,
which began with a very faint numbness in my fingers. Not a pins and needles
sensation but a buzzing feeling in each of my fingers, as well as a progressive
weakness with my grip, but fortunately no sensory loss. I didn’t think anything
of it for some time...
Labels:
CIDP,
Diagnosis,
Leeds,
NHS,
Numbness,
Pudsey,
Robin Lane Surgery,
Tests,
Tingling hands
Location:
Leeds, West Yorkshire, UK
Subscribe to:
Posts (Atom)