About me section

Hi, my name is Paul, I’m 26 and I have CIDP (Chronic Inflammatory Demylinating Polyneuropathy). This blog will try to document my symptoms, progression and treatment from start to finish, along with my frequent encounters with the NHS in both West Yorkshire and south Wales. This blog is an attempt to keep you and more importantly me entertained on this ongoing, ruddy bumpy, uncomfortable and often frustrating journey.

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This is me. Mid way through the Yorkshire 3 peaks in July 2012. 13 miles down, 13 more to go! (Not at all demoralised)

I can honestly say, my feet have never ached so much in my entire life! But from this I hope you can tell I was just like everyone else; reasonably fit, happy, quite outdoorsy and a keen angler (A link to my other blog Paul on Coarse Fishing can be found here). Now, I’m considerably less fit, still happy (with a few moody bouts), generally house bound (unless I break the Zimmer out) and it’s been well over a year since I’ve wet a line. If you’ve read this far you’re probably either aware of what CIDP is or are thinking “what on earth is this guy on about?” If either of those are the case, you’re committed, and I’m about to begin the story from the beginning...

21 June 2013

Bloody bloody bloods

A few days after my appointment with Dr Hambridge I had my blood taken, and as the title of this post suggests, they took a lot! But as I was surprised to discover, there are a whole raft of other potential ailments and illnesses that present with a tingling sensation in the extremities. Not particularly encouraging, (especially as the on-going joke between me and my partner was that “I never get ill”) but I wanted answers!

I hate needles...

5 vials (and a bit of squirming later) I was going to be tested for kidney function, liver function, vitamin b12 deficiency, inflammation and diabetes. As I learned later, these blood tests would also be able to rule out a raft of other complications etc. Thyroid issues, Haemochromotosis (which does run in my family) and other things I have never heard of.  As expected the following week my blood results came through as all normal (albeit slightly dehydrated) and the waiting game continued.

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