As I’d been recently diagnosed, as entered the nurse
practioner’s room quite prepared for a pep talk and to be on my way. This
wasn’t the case; Debbie Jackson is quite possible one of the best and most
understanding people I have ever met and what I thought was going to be a 10
minutes conversation turned into a 30 minutes detailed breakdown of everything
I had been told (medically) as well as a whole bunch of things that I hadn’t
even considered. It was here that it was really hammered home about the
significance of my recent diagnosis, and how long it was going to take me to
get back to normal. Guillian-Barre is quite rare and take involves a long
recovery period, CIDP is more chronic and even more rare, and can last for
years! Especially if not properly/successfully treated, caught in time or
diagnosed, so it was important that I “take things easy”, as I was
unfortunately in this for the long haul.
First order of business was arranging time off, that was
followed by an appointment to see occupational health regarding any return to
work and “reasonable adjustments”. Followed by a potential appointment to see a
neurophysiotherapist (then maybe hydrotherapy), followed by a scheduled meeting
with the Citizens Advice Bureau. Also a potential referral from the GP to the
hospital for appliances (to assist me with my foot drop), there was A LOT to
think about. What struck me was the genuine sincerity offered by Debbie. She
was incredibly helpful and supportive to both me and my partner whilst we
remained up in Leeds, and acted as another great ambassador for Robin Lane
Surgery. She also re-iterated that time off to rest up was imperative and gave
me a ream of paperwork to read through to help me with some difficult decisions
that I had to make.
It was time to swallow my pride and have a word with work. To
my surprise work were quite compliant with my need to rest, I imagine hobbling
around the office I did pose a slight Health and Safety risk. So, after a long
and horribly thorough hand over meeting, I was finally and officially off work
(this will take some getting use too), the question remains, for how long?
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