About me section
Hi, my name is Paul, I’m 26 and I have CIDP (Chronic Inflammatory Demylinating Polyneuropathy). This blog will try to document my symptoms, progression and treatment from start to finish, along with my frequent encounters with the NHS in both West Yorkshire and south Wales. This blog is an attempt to keep you and more importantly me entertained on this ongoing, ruddy bumpy, uncomfortable and often frustrating journey.
This is me. Mid way through the Yorkshire 3 peaks in July 2012. 13 miles down, 13 more to go! (Not at all demoralised)
I can honestly say, my feet have never ached so much in my entire life! But from this I hope you can tell I was just like everyone else; reasonably fit, happy, quite outdoorsy and a keen angler (A link to my other blog Paul on Coarse Fishing can be found here). Now, I’m considerably less fit, still happy (with a few moody bouts), generally house bound (unless I break the Zimmer out) and it’s been well over a year since I’ve wet a line. If you’ve read this far you’re probably either aware of what CIDP is or are thinking “what on earth is this guy on about?” If either of those are the case, you’re committed, and I’m about to begin the story from the beginning...
Showing posts with label self diagnosis. Show all posts
Showing posts with label self diagnosis. Show all posts
22 July 2013
Neurology appointment 1
Neurology Out-Patients is in the Jubilee Building of Leeds
General Infirmary and is a surprising distance when reduced to baby steps.
Still, I was optimistic, that with 2 appointments on one day I was going to
finally crack this nut and get some answers. Dutifully, my partner and I set
out and extensive timeline of symptoms, falls and aches as mentioned in my
previous post (thanks Rach), which I was prepared to recite to both consultants
if required. Arriving at the Neurology and Cardiac desk I took a seat and
waiting to be seen by Dr. Dunn.
2 July 2013
Relief, Respite and Improvement
Relief was my main thought having received the results of my
MRI, undeniable relief. Also, for the first time in some weeks my symptoms began
to abate. My legs didn’t feel so heavy, the tingling sensation in my hands drastically
reduced. My grip even seemed to be showing the smallest signs of improvement.
After feeling unsteady on my feet following my fall outside the hospital a week
or so earlier, I even surprised my family by walking 4 or so miles around
Temple Newsam Estate as an Easter Sunday treat. I thoroughly enjoyed seeing all
the newborn animals in the estate farm and walking around the ponds and
orangery.
24 June 2013
Google is the Enemy!
What I would advise anyone who is currently in “limbo land”
– awaiting diagnosis and finding out the cause of their symptoms, is to stay
well clear of Googling your symptoms. We all do it. Unfortunately neurological
disorders of all shapes and sizes manifest with my symptoms, which can cause
(if you’re like me) a considerable amount of emotional upheaval.
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