Even though I tried my very best to gleam the smallest amount of information from them, they couldn’t help (because they didn’t have any). All I knew was, something was not right, and it was happening in both my hands and legs, leaving me still pondering those questions. What did this result mean? Was there something more sinister (ALS) at work here? How long will I have to wait to be seen again? Would I need an Electromyography test (I hate needles)? I had a whole raft of other questions which now seem trivial but then seemed of paramount importance. The date of follow up appointment did however come through quite quickly and was actually on the same day as my neurology consult which I had been referred to from one of my previous trips to A & E.
Here was my opportunity. I had two face-to face appointments
with different consultants on the same day. I prepared myself to get the most
as I could out of these meetings. I didn’t want to forget to ask anything.
Between now and these appointments I armoured myself with a “super list”, and
would recommend anyone else in a similar boat to do the same. My partner and I
sat down and made a full list (or several lists as it happened) of any
information that could be useful:
-
List of symptoms- Detailed timescale of the progression of my symptoms
- Things that exacerbated my symptoms
- Things that improved my symptoms
- Medical history
- Family history
- And any further notes we thought may be of consequence.
This proved to be helpful to both us and the doctors, as
those appointments can always leave me a bit tongue tied or overwhelmed and
there is always something I wonder later if I should have mentioned.
No comments:
Post a Comment