About me section

Hi, my name is Paul, I’m 26 and I have CIDP (Chronic Inflammatory Demylinating Polyneuropathy). This blog will try to document my symptoms, progression and treatment from start to finish, along with my frequent encounters with the NHS in both West Yorkshire and south Wales. This blog is an attempt to keep you and more importantly me entertained on this ongoing, ruddy bumpy, uncomfortable and often frustrating journey.

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This is me. Mid way through the Yorkshire 3 peaks in July 2012. 13 miles down, 13 more to go! (Not at all demoralised)

I can honestly say, my feet have never ached so much in my entire life! But from this I hope you can tell I was just like everyone else; reasonably fit, happy, quite outdoorsy and a keen angler (A link to my other blog Paul on Coarse Fishing can be found here). Now, I’m considerably less fit, still happy (with a few moody bouts), generally house bound (unless I break the Zimmer out) and it’s been well over a year since I’ve wet a line. If you’ve read this far you’re probably either aware of what CIDP is or are thinking “what on earth is this guy on about?” If either of those are the case, you’re committed, and I’m about to begin the story from the beginning...

8 July 2013

The long wait (10 days)

Inconsistency is a swine! Especially when there is no definable link between good days and bad days. All things considered however I was starting to think that I was on the mend. I had had several reasonable days in a row, with improved grip strength and finger movement, coupled with my recent jaunt around Temple Newsam, things were mostly on the up! At times, particularly in the mornings I did struggle with inconsistency. It began to feel like I was once again trying to pin the tail on a bucking donkey running around a field... in the dark.

My lowest point during this time was, waking up on one particular morning I found that my feet were numb and my balance was incredibly unsteady. This was made more evident when I realised I couldn’t return to a standing position after sitting on the step in the shower, and for the first time I began to realise the seriousness of my situation. I was unable to push myself up into a standing position from sitting. There was no power in my legs, and because of my decreased grip getting out of this slippery situation was going to prove difficult. With the assistance of my partner I manoeuvred myself out of the bath and very sluggishly made my way back to bed, where I spent the next few hours slowly regaining both sensation and stability. I did eventually feel better and was back to work the next day, and my opinion at the time was one of “well I was due a bad day”. So all in all I thought I was on the right track.

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