About me section
Hi, my name is Paul, I’m 26 and I have CIDP (Chronic Inflammatory Demylinating Polyneuropathy). This blog will try to document my symptoms, progression and treatment from start to finish, along with my frequent encounters with the NHS in both West Yorkshire and south Wales. This blog is an attempt to keep you and more importantly me entertained on this ongoing, ruddy bumpy, uncomfortable and often frustrating journey.
This is me. Mid way through the Yorkshire 3 peaks in July 2012. 13 miles down, 13 more to go! (Not at all demoralised)
I can honestly say, my feet have never ached so much in my entire life! But from this I hope you can tell I was just like everyone else; reasonably fit, happy, quite outdoorsy and a keen angler (A link to my other blog Paul on Coarse Fishing can be found here). Now, I’m considerably less fit, still happy (with a few moody bouts), generally house bound (unless I break the Zimmer out) and it’s been well over a year since I’ve wet a line. If you’ve read this far you’re probably either aware of what CIDP is or are thinking “what on earth is this guy on about?” If either of those are the case, you’re committed, and I’m about to begin the story from the beginning...
Showing posts with label Neurophysiologist. Show all posts
Showing posts with label Neurophysiologist. Show all posts
22 July 2013
Nerve Conduction Study 2 – This time with a specialist
Following my appointment with Dr Azam (see previous post), I
made my way over to the neurophysiology department for my second appointment of
the day, with yet a fair few more questions buzzing around my head. The
internal walkway between the Jubilee and Brotherton wings of the LGI is really
quite far! - But fortunately quite level.
8 July 2013
Abnormal... Great
10 days and several chasing phone calls passed between
having my nerve conduction tests and finally receiving a phone call confirming
my NCS results had been received. The results were “Abnormal throughout”.
Abnormal how, they couldn’t tell me, but further tests would be required.
Great. Being told this information via a doctor at Robin Lane Surgery was
frustrating (although not in any way the GP’s fault), as they are GP’s and not
specialists they couldn’t answer my questions about what these results meant or
what could be causing the abnormalities.
2 July 2013
Nerve Conduction Study 1 – Plug me in and turn me on!
The day had finally arrived when I would be having my nerve
tests! My symptoms had reached what I thought was a plateau, and despite my
drugs best efforts I arrived at the Brotherton Wing of the Leeds General
Infirmary (LGI) having fully Googled what an NCS can and can’t diagnose, and
again ALS reared its ugly head in my conscious.
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