About me section

Hi, my name is Paul, I’m 26 and I have CIDP (Chronic Inflammatory Demylinating Polyneuropathy). This blog will try to document my symptoms, progression and treatment from start to finish, along with my frequent encounters with the NHS in both West Yorkshire and south Wales. This blog is an attempt to keep you and more importantly me entertained on this ongoing, ruddy bumpy, uncomfortable and often frustrating journey.

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This is me. Mid way through the Yorkshire 3 peaks in July 2012. 13 miles down, 13 more to go! (Not at all demoralised)

I can honestly say, my feet have never ached so much in my entire life! But from this I hope you can tell I was just like everyone else; reasonably fit, happy, quite outdoorsy and a keen angler (A link to my other blog Paul on Coarse Fishing can be found here). Now, I’m considerably less fit, still happy (with a few moody bouts), generally house bound (unless I break the Zimmer out) and it’s been well over a year since I’ve wet a line. If you’ve read this far you’re probably either aware of what CIDP is or are thinking “what on earth is this guy on about?” If either of those are the case, you’re committed, and I’m about to begin the story from the beginning...

21 June 2013

Some don’t like it hot.

Frustratingly, the symptoms in my hands became gradually worse and I began to notice that it was severely exacerbated by heat. It was a constant occurrence to wake up with severe tingling fingers/ hands whilst being warm. Then as the day wore on the tingling would become less. The heat as an accelerant of my symptoms became increasingly obvious on a Sunday morning after a warm bath. After a quick dip (10 minutes) both my hands became useless, which resulted in an outward display of frustration (me throwing my antiperspirant on the floor because I couldn’t hold the bottle or press the button with my finger). This was really starting to pee me off. Although I still hadn’t undergone my Nerve Conduction Study (NCS) I thought that the rapid progression of my symptoms, coupled with the lack of sensation, was sufficient enough to warrant a trip to A&E.

After a short wait I was seen by an on call consultant who gave me a brief physiological examination. I couldn’t help feeling rather sheepish, as since my arrival in A&E I had cooled down sufficiently to have gained some grip and reduced tingling, which made me feel like a hypochondriac. But what happened in the bathroom had really startled me. I explained briefly about the up and coming NCS and the progression of my symptoms after being warm. The consultant did express some concern that the symptoms I was displaying were not specifically related to the Ulnar nerve and there may be some median and radial nerve inflammation too, but the NCS would reveal any abnormalities’. He also asked whether I had a family history of Multiple Sclerosis or any other neurological disorders. My reply was “none that I can think of”. I was advised that taking Ibuprofen would reduce any existing inflammation, so with that being said I went on my way. But a seed had been planted, particularly as I know heat can exacerbate symptoms of MS, and online Self Diagnosis began!

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