On becoming ill it was very apparent that there wasn’t a
great deal out there in terms of support groups for Guillian-Barre and CIDP
sufferers. It was useful to actually Google the illness (now that I knew what I was looking for), but
the amount of coverage the illness receive was quite scanty (nervous term
there).
About me section
Hi, my name is Paul, I’m 26 and I have CIDP (Chronic Inflammatory Demylinating Polyneuropathy). This blog will try to document my symptoms, progression and treatment from start to finish, along with my frequent encounters with the NHS in both West Yorkshire and south Wales. This blog is an attempt to keep you and more importantly me entertained on this ongoing, ruddy bumpy, uncomfortable and often frustrating journey.
This is me. Mid way through the Yorkshire 3 peaks in July 2012. 13 miles down, 13 more to go! (Not at all demoralised)
I can honestly say, my feet have never ached so much in my entire life! But from this I hope you can tell I was just like everyone else; reasonably fit, happy, quite outdoorsy and a keen angler (A link to my other blog Paul on Coarse Fishing can be found here). Now, I’m considerably less fit, still happy (with a few moody bouts), generally house bound (unless I break the Zimmer out) and it’s been well over a year since I’ve wet a line. If you’ve read this far you’re probably either aware of what CIDP is or are thinking “what on earth is this guy on about?” If either of those are the case, you’re committed, and I’m about to begin the story from the beginning...
Showing posts with label Google. Show all posts
Showing posts with label Google. Show all posts
7 August 2013
2 July 2013
Relief, Respite and Improvement
Relief was my main thought having received the results of my
MRI, undeniable relief. Also, for the first time in some weeks my symptoms began
to abate. My legs didn’t feel so heavy, the tingling sensation in my hands drastically
reduced. My grip even seemed to be showing the smallest signs of improvement.
After feeling unsteady on my feet following my fall outside the hospital a week
or so earlier, I even surprised my family by walking 4 or so miles around
Temple Newsam Estate as an Easter Sunday treat. I thoroughly enjoyed seeing all
the newborn animals in the estate farm and walking around the ponds and
orangery.
24 June 2013
Google is the Enemy!
What I would advise anyone who is currently in “limbo land”
– awaiting diagnosis and finding out the cause of their symptoms, is to stay
well clear of Googling your symptoms. We all do it. Unfortunately neurological
disorders of all shapes and sizes manifest with my symptoms, which can cause
(if you’re like me) a considerable amount of emotional upheaval.
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