It was time for me to make another appointment with Robin
Lane Surgery. Prise aside, I never take time off work. If I’m ill, I’m ill,
nothing that a Lemsip won’t sort. And if that fails there’s always solphadol!
The prospect of taking an extended period of time off to get well never
occurred to me, as I was prepared to soldier on.
About me section
Hi, my name is Paul, I’m 26 and I have CIDP (Chronic Inflammatory Demylinating Polyneuropathy). This blog will try to document my symptoms, progression and treatment from start to finish, along with my frequent encounters with the NHS in both West Yorkshire and south Wales. This blog is an attempt to keep you and more importantly me entertained on this ongoing, ruddy bumpy, uncomfortable and often frustrating journey.
This is me. Mid way through the Yorkshire 3 peaks in July 2012. 13 miles down, 13 more to go! (Not at all demoralised)
I can honestly say, my feet have never ached so much in my entire life! But from this I hope you can tell I was just like everyone else; reasonably fit, happy, quite outdoorsy and a keen angler (A link to my other blog Paul on Coarse Fishing can be found here). Now, I’m considerably less fit, still happy (with a few moody bouts), generally house bound (unless I break the Zimmer out) and it’s been well over a year since I’ve wet a line. If you’ve read this far you’re probably either aware of what CIDP is or are thinking “what on earth is this guy on about?” If either of those are the case, you’re committed, and I’m about to begin the story from the beginning...
Showing posts with label Calf ache. Show all posts
Showing posts with label Calf ache. Show all posts
22 July 2013
Centre Parcs – The highs and the lows (and I’m not just talking about the rapids)
The wait between my first appointment with Dr. Azam and the
next appointment with Dr. Dunn was agonizing, especially as Dr. Azam had
suggested CIDP. Google here I come (never one to follow my own advice)! Having
read about the symptoms, progression and treatment online, (it has to be said
that Wikipedia’s constant use of the morbidity does nothing to inspire
confidence) it seemed fairly clear that the good Doctor might be on to a
winner. Some sites and blogs my partner and I read could frankly been written
by myself.
Nerve Conduction Study 2 – This time with a specialist
Following my appointment with Dr Azam (see previous post), I
made my way over to the neurophysiology department for my second appointment of
the day, with yet a fair few more questions buzzing around my head. The
internal walkway between the Jubilee and Brotherton wings of the LGI is really
quite far! - But fortunately quite level.
Labels:
Calf ache,
Diagnosis,
Dropped Feet,
Guillian Barre Syndrome,
Leeds,
Leeds General Infirmary,
Nerve Conduction Study,
Neurophysiologist,
Numb hands,
Numbness,
Tingling hands
Location:
Leeds, West Yorkshire, UK
2 July 2013
Monday Morning follow up!
So Monday morning came around and although still shaken up
by the weekend’s events, I went back to Robin Lane where I was seen in the
emergency care walk in clinic (a brilliant idea) by Dr. S. DeMowbrary. Regaling
her with the story of what happened on the weekend she showed obvious signs of
concern and asked what I wanted to do. I said ideally (and from what I’ve read)
an MRI would certainly rule out any disk herniations, or more specifically
spinal lesions associated with MS. Seeing that I was still unstable on my feet
and finding it difficult to stand on my tip toes, jump or jog, she requested an
urgent MRI to try and advance my situation.
Labels:
Anxiety,
Calf ache,
CIDP,
collapse,
Diagnosis,
heavy legs,
Pudsey,
Robin Lane Surgery,
Symptoms
Location:
Leeds, West Yorkshire, UK
24 June 2013
Wales v England
The symptoms in my hands and legs
continued steadily until an unfortunate peak on the 16th of March.
This date is remembered for a number of reasons, firstly - Wales defeating
England in the 6 Nations Rugby tournament to seal the championship – WIN; secondly
- because after walking 250 meters after watching the match I collapsed – FAIL.
Labels:
A&E,
Calf ache,
CIDP,
collapse,
Diagnosis,
heavy legs,
Leeds,
Leeds General Infirmary,
NHS,
Numbness,
Tingling hands
Location:
Leeds, West Yorkshire, UK
21 June 2013
Secondary symptoms – What a pain in the leg
It was around the
beginning of March that I started to develop another symptom. My calves began
to ache dully after walking any distance. They felt like you would expect them
too after a colossal calf work out in the gym, but after no exertion at all. I
put that down to lack of physical activity. Having moved house, I had gone from
walking a few miles every day to driving everywhere in the last 6 months, so I
hoped a bit of light exercise would rectify the issue.
Labels:
Calf ache,
CIDP,
Diagnosis,
heavy legs,
Leeds,
NHS,
Numbness,
Robin Lane Surgery,
Symptoms,
Tingling hands
Location:
Leeds, West Yorkshire, UK
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